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When we began our journey with Multiple Myeloma in 2000 the
only information we could fine were a few battered pages copied
from a book that had seen better days. Since then it has been
our mission that anyone wanting information should have access
to the most up to date information available in the world.
Crisp, clean and new. The Multiple Myeloma Research Foundation,
International Myeloma Foundation, Myeloma UK make this possible.
Confusion & shock reign in the first months after diagnosis
as patients are usually plunged straight into treatment. Often
there are big changes in their family and professional lives
plus the trauma of diagnosis and adapting to life as a cancer
patient. No matter how kindly or well you receive information
about your illness, understanding it at the time is often
impossible. To make this a little easier we offer meetings
where medical and nursing staff come to talk about myeloma,
treatment options, side effects & coming to terms with
a life threatening illness for which there is treatment but
there is still no cure.
Thanks to the generous support the staff of the Wellington
Blood and Cancer Centre, Wellington Hospital, the Duxton Hotel
and the Pharmaceutical Industry this work continues. We also
offer regular newsletters, support, & encouragement to
fellow patients & carers, act as independent advocate's
promoting awareness and understanding of Multiple Myeloma
through information, education & support. The role evolved
from the various support groups that we joined to aid our
own journey to the current emphasis on presenting eventsPromoting
awareness and understanding for people living with myeloma
and those who treat them. We believe that there is a need
for someone independent of all the various medical and social
disciplines to raise awareness of what is good, what is needed
and how to make it happen, for all involved in the shared
journey.
Since 2004 we have invited speakers from around the world
to come to Wellington to give the Annual Myeloma Dinner Lecture
and Patient Program.
- Judi & Ian McBride-Wilson 2006
Promote an environment for all
those affected by Multiple Myeloma to enjoy mutual support,
understanding and friendship.
Seek and disseminate
relevant information concerning all aspects of Multiple Myeloma,
including options for treatment and medication.
Work within the broader Myeloma
community both locally and internationally to access current
news and developments, which could assit members of our group.
Continue to
ensure that all members of the group, both survivors and their
families are supported in coping with all facets of their
condition.
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